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Should Persons Affected by Mitochondrial Disorders Not be Brought Into Existence?by Professor Calum MacKellarBioNewsJanuary 6th, 2014What is being proposed is not a form of therapy in which a person is being treated or cured for a disorder. Instead, it is making sure that certain persons are not brought into existence.
An Ethics for the Future of Genetic Testingby Sara HendrenThe AtlanticDecember 30th, 2013As testing becomes more advanced, how should expecting parents weigh the information they have about a fetus with the information they don't?
Selling Tests, Selling Treatments: A Few Reflections on Medical Advertisingby George Estreich, Biopolitical Times guest contributorDecember 18th, 2013The questions raised by the recent New York Times article about aggressive selling of ADD drugs should also be posed to those marketing non-invasive prenatal gene tests.
Too Much Informationby Amanda SchafferMIT Technology ReviewDecember 17th, 2013Advances in non-invasive prenatal screening could collide with the politics of abortion and raise the ugly specter of eugenics. Are there limits to how much data parents should have—or want to have—about their children before birth?
Building Better Humansby Zaineb MohammedEast Bay ExpressDecember 4th, 2013A new documentary looks at the impacts of human enhancement technologies. "I totally get the temptation," says the filmmaker. "But what are we fixing? Who is the problem?"
Adrienne Asch, Bioethicist and Pioneer in Disability Studies, Dies at 67by Margalit FoxThe New York TimesNovember 23rd, 2013Adrienne Asch, an internationally known bioethicist who opposed the use of prenatal testing and abortion to select children free of disabilities, died on Nov. 19 at her home in Manhattan.
Remembering Adrienne Aschby Marcy DarnovskyBiopolitical TimesNovember 21st, 2013We mourn the death and deeply appreciate the life of Adrienne Asch, bioethicist, scholar, and disability rights activist.
Future Past: Disability, Eugenics, & Brave New Worldsby Jessica CussinsBiopolitical TimesNovember 7th, 2013A public symposium held on November 1 at San Francisco State University provided a rare and important opportunity to engage with the historical and ongoing implications of eugenic ideologies and practices for people with disabilities.
Disability Studies: A New Normalby Cecilia Capuzzi SimonThe New York TimesNovember 1st, 2013Like black studies, women’s studies and other liberation-movement disciplines, disability studies teaches that it is an unaccepting society that needs normalizing, not the minority group.
Are We Too Close to Making Gattaca a Reality?by Ferris JabrScientific AmericanOctober 28th, 2013An era of market-based eugenics would exterminate any lingering notions of meritocracy. But that could never happen this side of the silver screen, right?
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