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About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



Trump, Science and Social Justiceby Pete ShanksDecember 8th, 2016President-elect Trump's appointments, so far, are frightening to anyone who cares about science, or social, economic and environmental justice.
"3-Parent Baby" Procedure Faces New Hurdleby Karen WeintraubScientific AmericanNovember 30th, 2016Mitochondrial disease can somehow creep back in, even if a mother’s mitochondria are virtually eliminated in an attempt to block inherited illnesses.
Human Gene Editing: A Timeline of CRISPR Cover StoriesWith recent gene editing tools, a number of high-profile media are featuring CRISPR on their covers and front pages. We gather highlights since early 2015, along with opinion polls, TV shows, and editorial board statements.
Review of Blame: A Novelby Abby Lippman, Biopolitical Times guest contributorNovember 28th, 2016Blame is especially important for those unfamiliar with the range of ethical, social, legal, and political issues raised by applications of what is learned in a lab. While a work of fiction, it is definitely not science-fiction
Obama’s Science Advisors Are Worried About Future CRISPR Terrorismby Daniel OberhausVICE MotherboardNovember 21st, 2016PCAST warn that under current legislation, there is no room for rapid response to threats and misuse, recommending improved biosurveillance as a solution.
Why the Deaf Community Fears President Trumpby Sara NovicVICENovember 18th, 2016According to his biographer, Trump subscribes to a racehorse theory of human development and the superiority of certain genes — an echo of eugenics.
Palo Alto committee debates whether Jordan school should keep its eugenicist namesakeby Jacqueline LeeSan Jose Mercury NewsNovember 17th, 2016David Starr Jordan, Stanford University’s first president, believed the human race could be improved through selective reproduction, including forced sterilization.
DNA-editing breakthrough could fix 'broken genes' in the brain, delay ageing and cure incurable diseasesby Ian JohnstonThe Independent [UK]November 16th, 2016The technique allows DNA changes that have not previously been possible, modifying the genes of non-dividing cells in a living animal.
Seeding Doubt: How Self-Appointed Guardians of “Sound Science” Tip the Scales Toward Industryby Liza GrossThe InterceptNovember 15th, 2016Sense About Science has downplayed concerns about industry-funded research and promoted science that favors private interests over public health.
Stem Cell Clinics Promise Miracle Cures, but at What Cost to Patients?by Philip PerryBig ThinkNovember 13th, 2016Taking advantage of a regulatory loophole, hundreds of clinics with virtually no oversight are offering stem cell therapies which are virtually untested, and make unsubstantiated claims about helping patients overcome disease.
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