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About Bioethics & Human Biotechnology


Bioethics established itself in the late 1960s as a field concerned with the ethical and philosophical implications of certain biological and medical procedures, technologies, and treatments. Early issues included end-of-life decision-making, organ donation, and human experimentation. Human biotechnology became a concern when the first bioethics institutes were established in the early 1970s. This attention skyrocketed in 1990 when the U.S. Human Genome Project earmarked 3% to 5% of its $3 billion federal budget to the Ethical, Legal, and Social Implications (ELSI) research program, making its activities the world's largest bioethics program.

Bioethics initially represented diverse ethical philosophies. But by the mid-1980s, most professional bioethicists were grounded in individualist and utilitarian frameworks. Bioethicists appropriately continued to consider informed consent, patient safety and similar topics, but their attention to the broad social and political meanings of human biotechnologies had faded.

This shift has been unfortunate for the public's understanding. Most bioethicists present themselves as disinterested analysts who can be trusted to represent a full range of constituencies: researchers, biotech corporations, patients, religious groups, marginalized communities, and other affected parties. But in fact, many promote their own world views, which often emphasize libertarian values over commitments to the public interest.

The role of bioethics has been further compromised by its increasing financial and professional ties to the biotech industry. Many university bioethics centers receive funding from biotech corporations, and many bioethicists serve as paid or unpaid members of corporate "ethical advisory boards."



Panel on the Ethics of New Stem Cell Cloning Method [VIDEO][With CGS's Marcy Darnovsky]China Central TelevisionMay 23rd, 2013Anchor Anand Naidoo joins Marcy Darnovsky of the Center for Genetics and Society, and Jeffrey Karp from the Harvard Stem Cell Institute to talk about the controversy surrounding a recent breakthrough in stem cell research involving the cloning of human stem cells.
Stem-Cell Cloner Acknowledges Errors in Groundbreaking Paperby David Cyranoski & Erika Check HaydenNatureMay 23rd, 2013A blockbuster paper that reported the creation of human stem-cell lines through cloning has come under fire.
Grant Reviewer Conflict in $40 Million Round at California Stem Cell Agencyby David JensenCalifornia Stem Cell ReportMay 21st, 2013An internationally renown scientist Lee Hood violated the conflict of interest policies of the California stem cell agency earlier this year when he was involved in reviewing applications.
Back to the Future: Cloning Human Stem Cells [VIDEO]Al JazeeraMay 17th, 2013Three scientists discuss the creation of stem cells through cloning and all agree: Given that there are less controversial alternatives, this is a dangerous, unethical, and unnecessary approach.
Human Stem Cell Cloning: 'Holy Grail' or Techno-Fantasy?by David KingCNNMay 17th, 2013There is definitely something special about this idea of "therapeutic cloning," something that has a religious feel to it. We are told that there will be great medical benefits and that the risks that there will be cloned babies are small, but in truth it's the other way round.
Gene-Testing Dispute Focuses on How Much a Patient Should Knowby John LauermanBloombergMay 16th, 2013Should patients undergoing broad DNA testing for a specific ailment be told of unexpected findings that signal risk of cancer or other serious diseases, even if they don’t request the information?
Cloning-Derived Stem Cells Raise Policy Questionsby Jessica CussinsBiopolitical TimesMay 16th, 2013Yesterday’s announcement that stem cells have been derived from cloned human embryos set off a media flurry, but important questions about reproductive cloning and women’s health were not widely addressed.
US Scientists With Cloning Techniques Created Human Embryonic Stem Cells[Quotes CGS's Marcy Darnovsky]MercoPressMay 16th, 2013Stem cells have been a research focus for more than a decade because they can morph into any type of cell, potentially leading to treatments to replace damaged cells and organs. But along with the promise of the technology has come ethical questions and worry over human clones.
What We Mean When We Say 'Race Is a Social Construct'by Ta-Nehisi CoatesThe AtlanticMay 15th, 2013If you tell me that you plan to study "race and intelligence" then it is only fair that I ask you, "What do you mean by race?"
EEOC Files and Settles Its First GINA-based Employment Discrimination Lawsuitby Jennifer K. WagnerGenomics Law ReportMay 13th, 2013Although individuals have brought complaints against employers alleging violations, this is the first lawsuit initiated by the EEOC to enforce the Genetic Information Nondiscrimination Act.
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