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About Civil Society & Human Biotechnology

"Civil society" refers to institutional political actors outside of government and private enterprise, typically nonprofit advocacy organizations and foundations. The term "non-governmental organization," or NGO, is closely related.

Civil society organizations have come to play an important role in ensuring the accountability of governments, countering the power of corporations, and contributing to democratic governance.

For most of today’s important issues – war and peace, economic growth and equity, ecological sustainability, race and gender equality, and many others – there are dense networks of civil society institutions. For the issues surrounding human biotechnologies, a civil society infrastructure is just beginning to emerge. 

18 Years Later: First Update on Children Born Using 3-person IVF Precursorby Leah LowthorpBiopolitical TimesOctober 27th, 2016Citing a recent study, the media is celebrating "proof" that there is little danger in 3-person IVF. The study itself, however, is not at all certain of the reliability of its results.
Blame bad incentives for bad scienceby Bethany BerkshireScienceNewsOctober 21st, 2016The publish-or-perish culture promotes high-impact papers with novel findings, ultimately leading to sloppy, irreproducible, and sometimes unethical practices.
First Spindle Nuclear Transfer Baby Has Low Mutant DNA Loadby Kate JohnsonMedscapeOctober 20th, 2016At the ASRM Scientific Congress, doctors express optimistic hope to continue using procedure for mitochondrial manipulation, with little caution.
Should young women sell their eggs?by Donna de la CruzThe New York TimesOctober 20th, 2016The amount of egg donors increased two-fold from 2000 to 2010, but the long-term risks of putting egg maturation into overdrive are still unknown.
Surprisingly few new parents enlist in study to have baby's genome sequencedby Jocelyn KaiserScience MagazineOctober 19th, 2016NIH-funded project, BabySeq, seeks to analyze protein-coding DNA for mutations in 7,000 genes associated with childhood diseases.
Social science: Include social equity in California Biohubby Science FARE (Feminist Anti-Racist Equity) Collective: Jessica Cussins, Kate Weatherford Darling, Ugo Edu, Laura Mamo, Jenny Reardon & Charis ThompsonNatureOctober 19th, 20165–7% of the Chan-Zuckerberg Initiative's Biohub health-research budget should be used to design and monitor goals of justice and equality from the outset, or social inequalities could limit the project's potential.
World Bioethics Day: Human Dignity and Human Rightsby Leah LowthorpBiopolitical TimesOctober 19th, 2016October 19 marks the first such international event sponsored by the UNESCO Chair in Bioethics. This year's theme of Human Dignity and Human Rights will be celebrated in 55 countries worldwide.
The Misleading Promise of I.V.F. for Women Over 40by Jane E. BrodyNew York TimesOctober 17th, 2016Miriam Zoll pushes back on the optimistic picture that the fertility industry paints for consumers that masks over 20 million failed IVF cycles.
Mouse eggs made from skin cells in a dishby David CyranoskiNatureOctober 17th, 2016Research breakthrough sparks debate over the prospect of using stem cell techniques to produce synthetic human eggs from body tissue.
DNA database could help predict your disease — then get you firedby David LazarusLos Angeles TimesOctober 14th, 2016The "Precision Medicine" project of introducing big data into healthcare comes with a host of risks for individuals and communities, including privacy and genetic discrimination.
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