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About Civil Society & Human Biotechnology


"Civil society" refers to institutional political actors outside of government and private enterprise, typically nonprofit advocacy organizations and foundations. The term "non-governmental organization," or NGO, is closely related.

Civil society organizations have come to play an important role in ensuring the accountability of governments, countering the power of corporations, and contributing to democratic governance.

For most of today’s important issues – war and peace, economic growth and equity, ecological sustainability, race and gender equality, and many others – there are dense networks of civil society institutions. For the issues surrounding human biotechnologies, a civil society infrastructure is just beginning to emerge. 



Panel discussion on the Ethical and Social Policy Considerations of Novel Techniques for Prevention of Maternal Transmission of Mitochondrial DNA Diseases (March/April 2015) [VIDEO][With CGS's Marcy Darnovsky]
Baby Genes to be Mapped at Birth in Medical Firstby Helen ThomsonNew ScientistApril 8th, 2015Could genome sequencing of newborns give valuable insight or do harm? That's the question US doctors are trying to answer in a pioneering trial starting this month.
Human Genetic Engineering Demands more than a Moratoriumby Sheila Jasanoff, J. Benjamin Hurlbut and Krishanu SahaThe GuardianApril 7th, 2015Expert calls for a moratorium on germline gene engineering are no substitute for richer public debate on the ethics and politics of our biotechnological futures.
165,000 Engagements End Due to ‘Genetic Incompatibilities’by Hussain Hazzazi and Ayman Al-SaidalaniSaudi GazetteMarch 24th, 2015In Saudi Arabia, health checkups are mandatory for engaged couples before they get married. The program aims to reduce the risk of having children with any blood or gastronomical diseases.
Public interest group condemns human germline modification efforts, supports research moratorium, calls for US prohibition[Press Statement]March 19th, 2015We're at a watershed moment in determining whether human genetic technologies will be used in the public interest and for the common good, or in ways that are dangerous and socially pernicious.
Universal Newborn Genome Sequencing and Generation Alphaby Ricki Lewis, Biopolitical Times guest contributorMarch 16th, 2015What might the future look like, as whole-genome sequencing of newborns ramps up?
California and your DNA: Is it a healthy relationship? by Jessica CussinsBiopolitical TimesMarch 16th, 2015While every state across the country takes part in newborn screening, each state differs in how it handles the blood cards and the genetic information they hold. In California, those cards are stored indefinitely and potentially rented out for a broad array of uses.
The Many Ethical Implications of Emerging Technologies by Nayef Al-RodhanScientific AmericanMarch 13th, 2015Brainlike computer chips, smart pharmacology and other advances offer great promise but also raise serious questions that we must deal with now.
Virginia Votes Compensation for Victims of its Eugenic Sterilization Programby Jaydee Hanson, Biopolitical Times guest contributorMarch 5th, 2015Virginia’s eugenic sterilization law was revoked in 1979. It has taken 35 years for the state to decide to provide financial reparations for its victims, each of whom will receive $25,000.
State has DNA Databases from Cradle to Jailby Jeremy B. WhiteThe Sacramento BeeMarch 4th, 2015Soon after every baby in California is born, a hospital worker extracts and logs its genetic information. It will be tested for diseases and then stashed permanently in a warehouse containing a generation of Californians’ DNA.
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