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About the States' Policies & Human Biotechnology


Individual states are filling the regulatory void created by the federal government’s failure to provide comprehensive legislation governing human biotechnologies. This is creating an often inconsistent policy patchwork.

California

State action is evident in a number of areas, including embryonic stem cell, cloning, egg retrieval, and assisted reproduction. More than a dozen states have laws banning reproductive cloning, about half of which also prohibit cloning for stem cell research. Dozens of similar bills are introduced in other states each year.

In response to President Bush’s restrictions on the federal funding of human embryonic stem cell research, several states initiated their own funded research programs. California led the way in 2004 with Proposition 71, which set aside $3 billion of public funds for stem cell research over ten years.



The Blurred Lines of Genetic Data: Practicality, Pleasure and Policingby Jessica CussinsBiopolitical TimesMay 7th, 2015Amidst a rumor that Apple may encourage iPhone owners to participate in DNA testing and share their genetic data, shocking news from Ancestry.com and the Idaho police is a reminder that we don’t always control what happens with our data, and won’t always like it.
US Stem Cell Clinics, Patient Safety, and the FDAby Leigh TurnerTrends in Molecular MedicineMay 1st, 2015Fatal outcomes, complications, and lawsuits have not slowed the rapid spread of businesses promoting unapproved stem cell interventions.
A Look Inside a Stem Cell Clinic Infomercial Eventby David BrafmanKnoepfler Lab Stem Cell BlogApril 29th, 2015Over the past several years there has been a proliferation of so-called stem cell ‘clinics’, which promise patients miraculous therapies often for currently incurable diseases and disorders.
Fix the Flaws in Forensic Scienceby Eric S. LanderThe New York TimesApril 21st, 2015A Justice Department review found that F.B.I. testimony about hair identification was fundamentally flawed in 96% of the cases it examined. Of those defendants, 33 received the death penalty and nine have been executed so far.
CRISPR Patent Fight Now a Winner-Take-All Matchby Antonio RegaladoMIT Technology ReviewApril 15th, 2015Lab notebooks could determine who was first to invent a revolutionary gene-editing technology.
The Rights of Donor-Conceived Offspringby Naomi Cahn, Biopolitical Times guest contributorApril 15th, 2015While their parents’ choices affect them as children, donor-conceived children grow up, and many become curious about their origins. The law’s tight focus on the parent-child relationship excludes legal questions relating to donor-conceived adults.
Lightly Regulated In Vitro Fertilization Yields Thousands of Babies Annually[Quotes CGS's Marcy Darnovsky]by Michael OlloveThe Washington PostApril 13th, 2015Both the federal government and the states have given the multi-billion-dollar industry a wide berth, which makes this country very much an outlier compared with the rest of the developed world.
Attorneys: Sterilizations were Part of Plea Deal Talksby  Sheila BurkeAssociated PressMarch 28th, 2015Nashville prosecutors have made sterilization of women part of plea negotiations at least four times in the past five years.
Practical Plan for Managing Human Germline Genetic Modificationby Paul KnoepflerKnoepfler Lab Stem Cell BlogMarch 20th, 2015There is a growing sense of urgency amongst biomedical scientists to take a proactive approach to current and future use of CRISPR technology in human germ cells and embryos.
States aren't Eager to Regulate Fertility Industry[Quotes CGS's Marcy Darnovsky]by Michael OlloveUSA TodayMarch 19th, 2015Compared to many other industrialized nations, neither the U.S. nor state governments do much to oversee the multibillion-dollar assisted reproduction industry.
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