Home Overview Press Room Blog Publications For Students about us
Search

About Disability & Human Biotechnology


Disability rights advocates have been among the earliest and most vocal critics of emerging genetic and reproductive technologies. Many people with disabilities are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue disabled people’s bodies and ultimately their lives.

This concern is informed by past and ongoing discrimination against people with disabilities that often includes brutal practices. For example, twentieth-century eugenicis­ts in the United States and some European countries sponsored programs that sterilized tens of thousands of disabled people. The Nazi genocide began with doctors and nurses exterminating over 100,000 disabled people in German medical facilities; tens of thousands more perished in concentration camps.

This historical context gives pause to disability rights advocates concerned about existing selection technologies that are increasingly being used to prevent the birth of children with particular traits, as well as future technologies that could be used to modify children’s genes.



Banning Abortion for Down Syndrome: Legal or Ethical Justification? by Bonnie SteinbockHastings Center Bioethics ForumAugust 26th, 2015Instead of passing an unenforceable and unconstitutional law, Ohio should devote its time to ensuring that all people with disabilities, Down syndrome or otherwise, get the resources and services they need.
Court: $50M verdict in Seattle-area ‘wrongful birth’ doesn't shock the conscienceby Levi PulkkinenSeattlePIAugust 26th, 2015Washington three-judge panel affirms multi-million jury award to couple who sued their fertility clinic for failing to effectively screen for their new child's chromosomal abnormality.
Ohio Bill Would Ban Abortion if Down Syndrome Is Reasonby Tamar LewinThe New York TimesAugust 22nd, 2015Abortion opponents are pushing Ohio to make it illegal for a doctor to perform an abortion if a woman is terminating her pregnancy to avoid having a baby with Down syndrome.
Conversation with Kelly Hills: Human Genetic Modification & Bioethicsby Paul KnoepflerKnoepfler Lab Stem Cell BlogAugust 20th, 2015An interview with bioethics commentator Kelly Hills tackles some of the key issues surrounding the potential use of CRISPR-Cas9 technology to make heritable genetic modifications in humans.
Právo: No One Wants Czech Child Born to Surrogate Mother [The Czech Republic]by CTKPrague Daily MonitorAugust 13th, 20151-year-old baby, diagnosed with congenital epilepsy and paralysis, left in institutional care in Czech Republic after intended parents and surrogate mother waive parental rights.
Putting Ourselves in Harm's Way: Thoughts on Pinker and the Role of Bioethicsby Nathaniel Comfort, Biopolitical Times guest contributorAugust 12th, 2015Nathaniel Comfort confronts Steven Pinker and the legacy of biomedicine, arguing ethicists and historians need to "get in harm's way to spare harm to others."
Can We Cure Genetic Diseases Without Slipping Into Eugenics?by Nathaniel ComfortThe NationJuly 16th, 2015Gene editing could correct genetic mutations for serious illnesses. Will it also create a new eugenics of personal choice?
Eliminating Intersex Babies Is not a Legitimate Use of Genetic Embryo Testingby Celeste OrrThe GuardianJuly 11th, 2015Using preimplantation genetic diagnosis to select against embryos with culturally devalued bodies, like intersex people and people with disabilities, is simply a contemporary example of eugenics.
Misunderstanding the Genome: A (Polite) Rantby Jonathan GitlinArsTechnicaJuly 8th, 2015One misconception: Genetic tests don't always tell you if someone has a disease. They're typically probabilistic — they tell you if you've got a greater chance of a problem than the average person.
First Federal Bill to Acknowledge US Eugenics Would Help Victims of State Sterilization Programsby Jonathan ChernoguzBiopolitical TimesJuly 8th, 2015If passed, it would be the first federal legislation to recognize the history of sterilization abuse that took place during the twentieth century in the name of eugenics.
Displaying 1-10 of 215  
Next >> 
Last Page » 
« Show Complete List » 


ESPAÑOL | PORTUGUÊS | Русский

home | overview | blog | publications| about us | donate | newsletter | press room | privacy policy

CGS • 1936 University Ave, Suite 350, Berkeley, CA 94704 • • (p) 1.510.665.7760 • (F) 1.510.665.8760