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About Civil Society & Human Biotechnology


"Civil society" refers to institutional political actors outside of government and private enterprise, typically nonprofit advocacy organizations and foundations. The term "non-governmental organization," or NGO, is closely related.

Civil society organizations have come to play an important role in ensuring the accountability of governments, countering the power of corporations, and contributing to democratic governance.

For most of today’s important issues – war and peace, economic growth and equity, ecological sustainability, race and gender equality, and many others – there are dense networks of civil society institutions. For the issues surrounding human biotechnologies, a civil society infrastructure is just beginning to emerge. 



The Direct-to-Consumer Stem Cell Industry in the USby Pete ShanksJuly 15th, 2016There are more stem-cell clinics than anyone suspected, and it’s not clear that they are operating with proper supervision.
The EEOC’s Final Rule on GINA and Employer-Sponsored Wellness Programs to Take Effect This Monthby Jennifer K. WagnerGenomics Law ReportJuly 14th, 2016The Genetic Information Nondiscrimination Act now has updated regulations around health information obtained from employees' spouses.
Puffing Cryonics in New Scientist?by Pete ShanksJuly 13th, 2016New Scientist is a popular science magazine that sometimes prioritizes popularity over science.
Why science needs progressive voices more than ever by Alice BellThe GuardianJuly 6th, 2016After Brexit, science must speak up for those who have been marginalized.
A Nation Ruled by Science Is a Terrible Ideaby Jeffrey GuhinSlateJuly 5th, 2016Logic and rationality can erase the nuances of people's lives.
Undertake a Clinical Trial at Your Own Riskby Steve SternbergUS News & World ReportJune 10th, 2016"Money should be set aside to care for people like me, if we're damaged in a clinical trial. We shouldn't be discarded."
DEA Wants Inside Your Medical Records to Fight the War on Drugsby Christopher MoraffThe Daily Beast June 9th, 2016The agency wants access to millions of private health files without a warrant, including those of two transgender men who are taking testosterone.
Biden unveils launch of major, open-access database to advance cancer researchby Laurie McGinleyThe Washington PostJune 6th, 2016The Vice President says the Genomic Data Commons will encourage collaboration among scientists, and will protect patient privacy.
What It Means To Be Human Is Changing Thanks To Gene Editingby Joe Matthews (Zócalo Public Square)Huffington PostMay 27th, 2016“We might be splitting in class between those who can afford to manage our children eugenically and those who cannot.”
As an industry giant invests in science fairs, we all invest (for better or worse) in biotechby Carl ZimmerSTATMay 26th, 2016School science fairs have evolved into sites of biotech and biomedical sponsorship and cultivation.
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