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About Civil Society & Human Biotechnology

"Civil society" refers to institutional political actors outside of government and private enterprise, typically nonprofit advocacy organizations and foundations. The term "non-governmental organization," or NGO, is closely related.

Civil society organizations have come to play an important role in ensuring the accountability of governments, countering the power of corporations, and contributing to democratic governance.

For most of today’s important issues – war and peace, economic growth and equity, ecological sustainability, race and gender equality, and many others – there are dense networks of civil society institutions. For the issues surrounding human biotechnologies, a civil society infrastructure is just beginning to emerge. 

Gene-edited 'micropigs' to be sold as pets at Chinese instituteby David CyranoskiNature NewsSeptember 29th, 2015The pigs were originally engineered as models for human disease to test expensive drugs in smaller quantities, but the excitement for customizable pets may be serving as a distraction from synthetic biology's more pressing concerns and controversies.
Born that way? ‘Scientific’ racism is creeping back into our thinking. Here’s what to watch out for.by W. Carson Byrd & Matthew W. HugheyWashington PostSeptember 28th, 2015Two recent studies and a review of current events show the media and white communities embracing the idea of racial genetic differences in order to avoid confronting the history of systemic oppression of racialized groups.
Seeing Others: Is Racial Prejudice Innate or Learned?[Cites CGS's Osagie Obasogie]by Chelsea LeuCalifornia MagazineSeptember 24th, 2015UC Hastings professor and CGS Senior Fellow Osagie Obasogie explains that the way blind people understand race supports the idea that the perception of race is learned.
The Life of a Professional Guinea Pigby Cari RommThe AtlanticSeptember 23rd, 2015Phase 1 trials are almost always where the money is. Is paying vulnerable populations to participate in dangerous drug studies the equivalent of coercion?
Can knowing you and your family may get Alzheimer’s ever be positive?by Giulia RhodesThe GuardianSeptember 21st, 2015In the vast majority of cases, the cause of Alzheimer’s remains unclear, a complex interplay of environmental and genetic factors not yet fully understood.
CRISPR Democracy: Gene Editing and the Need for Inclusive Deliberationby J. Benjamin Hurlbut, Krishanu Saha, & Sheila JasanoffIssues in Science and TechnologySeptember 21st, 2015CRISPR raises basic questions about the rightful place of science in governing the future in democratic societies.
"Moonshot Medicine": Putative Precision vs. Messy Genomesby Gina Maranto, Biopolitical Times guest contributorSeptember 9th, 2015The promise is "personalized" genetic treatment plans; the reality is that most health disparities are environmental.
The Moral Imperative for Psychologistsby George Annas, Biopolitical Times guest contributorSeptember 9th, 2015Is Steven Pinker’s recent essay a hidden plea to save scientific research from the perversion of ethically unfettered technological progress?
Nepal Bans Surrogate Births — Worry for Gay Israelisby JTAThe ForwardAugust 27th, 2015Many gay Israelis now travel to Nepal for surrogacy because Israel bans surrogate pregnancies for same-sex couples.
Court: $50M verdict in Seattle-area ‘wrongful birth’ doesn't shock the conscienceby Levi PulkkinenSeattlePIAugust 26th, 2015A Washington appeals court upheld a $50 million verdict in favor of a couple whose son was born with severe birth defects that should have been spotted by genetic testing.
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